About us information
Our supporters page features direct links with companies who have shown continued support to the Trust
Below are a few websites which may be useful to families who have a child with a serious illness.
Cancerbackup/Macmillan Cancer Support
Macmillan Cancer Support improves the lives of people affected by cancer. On the Cancerbackup website, you can find over 6,000 pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers.www.cancerbackup.org.uk/Cancertype/Childrenscancers
Children’s Cancer and Leukaemia Group (CCLG)
The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group's main remit is the coordination of national and international clinical trials and a paediatric tissue bank. Other areas of activity include national cancer registration and the provision of information for patients and families.
General support and advice
CLIC Sargent is a national charity which cares for children and young people with cancer and their families – in hospital and in the community. They offer a range of services from information to specialist medical staff and free accommodation near hospitals. www.clicsargent.org.uk
Respite care and end of life support
Children’s Hospices UK
Children’s Hospices UK offers information on children’s hospices based in the UK. It is the national charity that gives voice and support to all children’s hospice services. Its vision is for every child and young person who is not expected to reach adulthood and their family to have access to the highest standards of children's hospice care and support close to home.
Children’s Hospice South West
Children's Hospice South West cares for children in Devon, Cornwall and Somerset with life-limiting or life-threatening conditions and provides hospice care and support for them and their families.
Helen and Douglas House, Oxford
Helen & Douglas House is a registered charity providing respite and end of life care for children and young adults with life-shortening conditions, as well as support and friendship for the whole family. Helen House opened in 1982 and was the first children’s hospice in the world. It was started by Sister Frances Dominica who is also a Patron of Sebastian’s Action Trust.
Naomi House Children’s Hospice, Hampshire
Provide respite care, terminal care and bereavement support for children and families from across the south of England.
Shooting Star Children’s Hospice, Middlesex
Shooting Star offers a range of care services for children and young people with life-limiting conditions and their families. These can take place in the family home, in the community and at Shooting Star House, the purpose-built facility based in Hampton, Middlesex.
Mark Courage (Chair)
Mark has been involved with the charity since its inception, initially fundraising through activities such as the Windsor Half Marathon 2004, the London Marathon 2006, The Three Peaks Challenge 2011 and more recently the London Prudential Ride 100. Having accepted the invitation to become a Trustee in 2014 he was elected as Chair of Trustees in June 2015.
Brendan has been associated with the Trust since 2013. Having initially provided pro-bono legal advice to the Trust, he was delighted to be asked to become a Trustee and is the Trust's advisor on legal and governance matters.
Candida was involved in the care of our founder as Sebastian's Community Children's Nurse. A Trustee since 2007, Candida has volunteered extensively for the Trust, and is delighted to have played a part in the development of The Bluebells and many services available to families.
Anne became involved with the Trust at the planning application stage for The Bluebells, and was invited to join the Board of Trustees in 2011. She is a counsellor and trainer and has published widely. She uses this aspect of her professional background to provide clinical supervision to the Family Services team.
Linda is a qualified marketer with over 25 years of IT marketing experience. She has been a supporter of Sebastian’s Action Trust for the last three years, having been the main point of contact for the charity in her organisation. She was honoured to be invited to join the Board of Trustees in September 2017 and looks forward to being involved in the very important work undertaken by the Trust.
Sheila has over 30 years’ experience in the pharmaceutical industry in both commercial and compliance roles working throughout the globe. She is also a Magistrate in North Hampshire and has a keen interest in governance matters. Sheila was delighted and honoured to be invited to join the Board of Trustees in September 2017 having been a keen supporter of the Trust both personally and as a member of her last employers’ Charity Committee when the Trust was supported by the company.
Fiona has been a supporter and admirer of the Trust for several years initially fundraising at Hall Grove School, where her son was a pupil. The first event in 2005 involved taking a group of ten year old boys,to run 'a sixth of a marathon for Seb' around Virginia Water. Later that year Fiona ran the Windsor half marathon for the Trust, followed by the London Marathon in 2011.
Fiona retired from her role as a GP in early 2017 and became a volunteer befriender for the Trust. Fiona is looking forward to contributing to the Trust's Family Services team, and using her valuable experience as a GP and setting up mental health services for primary care.
We are very fortunate to receive support from local, national and international companies, whose incredible generosity makes a vital difference to our charity year on year. All of our corporate partners go that extra mile and are extremely passionate, dedicated and committed, not only in raising vital awareness of our work but also much needed funds.
A special thank you goes to the following companies, many of whom have supported us from our earliest days:
Our Charity of the Year partners for 2014 include:
BJP Insurance Brokers Ltd
British Gas Staines
Crowthorne and Sandhurst Rotary Club
Donnington Grove Golf Club
High Elms Golf Clubs
Lochailort Investments Ltd
PEPSICO Team Wholesale
Pop Goes The Choir
Purley Downs Golf Club
School Trips Ltd
Wash Me Clean
“I have looked after children with cancer and their families for over 25 years. I am only too aware of the devastating effect on a family of a diagnosis of a life-threatening illness in a child. The practical family support that Sebastian’s Action Trust can provide and the opportunity to stay in Bluebells are having a wonderful impact on the families supported by the Trust. I knew Sebastian and I am delighted to be a Patron of this unique charity and to support his wish to create a house for special memories.”
“A life cut short is a tragedy few of us can comprehend, but here at Hall Grove the name Sebastian Gates is spoken less in sadness than in admiration and respect. Sebastian’s courage, good humour, imagination, resourcefulness and persistence are all combined in the campaign led by his family and closest friends. His spirit is hard at work, achieving the apparently impossible against the shortest odds. It is an enormous privilege to have been invited to serve the campaign as patron.”
Since becoming closely involved with Sebastian's Action Trust, if I didn't fully realise it then, I certainly do now, just how immeasurably valuable the work they do and the support, help and comfort they extend out to those they touch is. When days cannot be added to life, it is essential that life be added to days. The work of the Trust - the passion, zeal, boundless energy and joy they engender means that truly they do add life to those precious days.
"We first became aware of the incredible work of Sebastian's Action Trust in the summer of 2006 and over the past five years have never ceased to be amazed, humbled and inspired by the remarkable work of the Gates family and the Trust that they set up in their son's name. We are immensely proud to have been invited to become Patrons and pledge our continued support to ensure that Sebastian's dream not only becomes but remains a reality."
"Having met Sebastian and been involved with the Trust for some time, I feel very strongly about the good work the Trust does and am absolutely delighted to have been asked to become a Patron."
“I’m honoured and happy to be a Patron, and am so proud to have been associated with Sebastian's Action Trust since its inception in 2003. The Bluebells and the services of The Trust have made a real difference to the lives of many seriously-ill children and their families. I look forward to continuing to play an integral part in raising the required funds to make Sebastian’s wish happen.”
“I am delighted to have been asked to become a Patron of Sebastian’s Action Trust, having attended the Pride of Britain awards and spending time in the company of Sebastian’s parents Jane and Michael and also his Sister Rebecca I was truly moved as a Father of a young Son to have heard Sebastian’s life affirming story and Sebastian’s determination to do good for others despite his own life threatening condition. I was also amazed to hear how his spirit lives on in the Trust, talking with his parents it was as if he was still here in the room with us. The Bluebells is truly inspirational and needs all of the support it can get so it may continue with the work that Sebastian set out for it to do and also hopefully over time create more Bluebells for more children like Sebastian.”
His Honour Judge Andrew Barnett
My first visit to The Bluebells and a meeting with Jane Gates was a truly inspiring experience. I had no idea that so much could be achieved with such benefit for those in the agonising position that Jane herself had found herself when Sebastian fell ill. It is a real tribute to her and all those who have become involved in the pioneering and running of this organisation that it has become such a success. It proves that there is hope even in the darkest hours. I have no doubt that the Trust will continue to develop and go from strength to strength. I am very privileged to have been asked to be a Patron.